http://freemybrain.com Trying to live well, to live a purposeful life, with chronic illness, since I don't get the choice of living it without! Wed, 15 Jun 2011 01:19:15 +0000 http://backend.userland.com/rss092 en Some of my dear bestest buddies from the forum over at My Migraine Connection were over at my house on Sunday, for reals! It was so wonderful having MaxJerz (and her Mom) and KatintheCorner in my own space. MJ was back visiting my state, where she grew up, after being ... http://freemybrain.com/migraine-meet-up-in-real-life/ It's ten o'clock on a Tuesday night and I have a little bit of a Migraine - one of those left-over ones. Left-over Migraine is not a clinical diagnosis, mind you. Just the way I describe it - had a nasty one Saturday and all day Sunday and then a ... http://freemybrain.com/life-and-migraines-go-on/ I'm coming late to the party. It's 3 days after the official Love Beats Hate event and I haven't even managed to read very many of the posts - I'm working on it. But I figure keeping the love alive is not a bad thing to do. And I want ... http://freemybrain.com/love-beats-hate-i-get-by-with-a-little-help-from-my-friends/ My CPU is messing up its P. My wires are crossed, frayed and fragmented. The volume knob on my pain processors is broken and they don't make the replacement part. There's a bug in my programming that no one knows how to debug. I am exquisitely sensitive. I want to ... http://freemybrain.com/having-a-wonky-nervous-system/ Have you heard the news? Botox has been approved by the FDA for treatment of chronic Migraine. I first heard it from Diana Lee at Somebody Heal Me, but it's been in the press this past week. This is great news for many chronic Migraineurs. Health insurers who have been ... http://freemybrain.com/botox-news-can-i-do-migraine-education-without-getting-nasty/ I am counting on some of you old hands at living with fibro to chime in on this one, okay? I believe I have had fibromyalgia for at least 15 years, and maybe for 35 years. I've only been diagnosed for a little over a year, though. My fibro seems ... http://freemybrain.com/walking-with-fibromyalgia/ I am very fortunate to have my Migraine days down to 3-5 a month now, and most of the Migraines are relatively mild and abort quickly. One thing I notice is that individual Migraine triggers are not so much of an issue, but a whole stack of them will still ... http://freemybrain.com/becoming-trigger-resistant/ On Thursday of this week I had a great opportunity. I was invited by Jack Barrette of WEGO Health to be on a panel presenting Health Activists' perspectives to pharmaceutical marketers. The conference was called the Multi-Channel Pharma Marketing Event, and participants were hearing about how to market in a ... http://freemybrain.com/speaking-to-pharma-marketers/ I recently finished The Language of Pain, by David Biro, M.D. A practicing physician in Brooklyn, NY, Dr. Biro also has a PhD in literature. This interesting combination of educational disciplines, together with Dr. Biro's own experience as a patient with a blood disorder, leads to his thoughtful and philosophical ... http://freemybrain.com/the-language-of-pain-a-review/ I am enjoying a long stretch of freedom from pain in the brain. Hooray! I have had only six Migraines since late June. Less than one a week! A better rate than I've achieved in the past three years, at least. I began taking the blood pressure medication Lisinopril in ... http://freemybrain.com/a-certain-level-of-brain-freedom/